Sunday, February 7, 2010

CHD Awareness Week

This week is Congenital Heart Defect Awareness Week.  Our friend, Candice, made this video about some of the "heart kids" at Egleston.  We met her while Samuel was in the hospital, and her daughter, Susan, was in for her third heart surgery.  Samuel is about 4 1/2 minutes into the video. 

You can watch the video by clicking this link:
CHD Awareness Video

On Tuesday I am planning to go down to the state capitol with Candice to hear a statement read by Gov. Purdue.

I still feel so new to the "heart world," and in some ways I don't even feel a part of it since our chapter is closed, and so many continue on this journey, but CHD has changed our lives forever and is a permanent part of our story and the story God is telling in and through us.  I don't want to ignore CHD, and I'm trying to figure out how this "heart world" fits into our lives now.  I currently have no idea what that looks like, so this is an initial step.

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